• 26 May 2022
    12:30 - 14:00

The Digital Health Regional Networks Event programme is back, with our second virtual event in the series taking place
Thursday 26 May, 12:30-14:00.

This event will have a focus on content from across the North West, North East, Yorkshire and the Humber

The Regional Networks Event series is dedicated to NHS IT leaders, focused on sharing digital best practice, latest updates, developments, and implementations underway in a particular region. The benefits to Network Members attending these events is having the opportunity to learn from peers across the region, share their wins, seek out answers, learn from Network Sponsors on their latest products, services and client activity, and network with fellow members.

This programme of events is only open to our Network Members which include, digital health leaders from across the NHS, public sector, charitable sectors, academia, and our Network Sponsors.


Welcome and introductions
Chair tbc

Building an International Patient Summary Minimum Viable Product (MVP) with the YHCR open platform tools
Lee Rickles
– Yorkshire & Humber Care Record Programme Director, CIO & Deputy SIRO, Humber Teaching NHS Foundation Trust

In June of 2021 the G7 counties made a commitment to working towards adopting a standardised minimum health dataset for patients’ health information, including through the International Patient Summary (IPS) standard; developing internationally shared principles for enabling patient access to health data; and promoting the use of open standards for health data.

NHS England commissioned the Yorkshire & Humber Care Record programme to use their Interweave and Helm to create an International Patient Summary minimum viable product (MVP).  Using the YHCR open platform tooling, IPS FHIR standard and working rapidly with NHS England the MVP was created and presented to the G7 in December 2021.

This presentation explains the background and the MVP.

Introducing a User Centred Design approach to a local system
Dr Ayesha Rahim – CCIO, Lancashire and South Cumbria NHS FT & Clinical Lead for Digital Mental Health, Transformation Directorate NHSE/I
Linda Vernon – Acting Digital Culture and Transformation Clinical Lead, Lancashire and South Cumbria ICS

Hear about the benefits and challenges of introducing a UCD approach to digital transformation across an entire ICS. Ayesha Rahim and Linda Vernon offer perspectives from a provider level and a system level respectively.

Joint Q&A

Integrating daily patient-reported information into clinical care: the Remote Monitoring of Rheumatoid Arthritis (REMORA) study
Professor Will Dixon – Consultant Rheumatologist, Salford Royal NHS Foundation Trust & Professor of Digital Epidemiology, University of Manchester

“How have you been in the last six months?” Hard to describe, isn’t it? Yet this is the first question hospital doctors typically ask at outpatient appointments for people living with long-term conditions. In this session, we will describe the REMORA (Remote Monitoring in Rheumatoid Arthritis) programme, including findings from our proof-of-concept study and ongoing research. REMORA uniquely allows patients to track their daily symptoms using a smartphone app then integrates that data into the electronic health record to provide a visual summary of symptoms and a clear picture of how patients have been in the last six months.

Today’s patients training tomorrow’s doctors: Patients Know Best working with the University of Manchester Medical School
Dr Mohammad Al-Ubaydli
– CEO, Patients Know Best

In 2014, patients started training medical students on consultation skills using Patients Know Best.  Since then, the University of Leicester Medical School has graduated over 1,300 doctors, each with 5 years of training with those patients. PKB provides the service pro bono to educational institutions as parts of its mission as a social enterprise, preparing professionals on working with empowered patients. In 2021, the University of Manchester Medical School started a new methodology to train students. This talk will discuss Manchester’s approach and the possibilities for other educators in the city.”

Joint Q&A

Closing remarks
Chair tbc

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Our Speakers

Lee RicklesLee Rickles – Yorkshire & Humber Care Record Programme Director, Chief Information Officer & Deputy SIRO, Humber Teaching NHS FT
Lee is a member of the CIO advisory board, a CHIME Certificated Health Chief Information Officer and alumni of the Digital Academy. He has had significant experience in the development of change strategies; digital developments and procurement of Information Technology Services and systems. Lee is currently is leading the development of the Yorkshire & Humber Care Record, Digital transformation of Humber Coast & Vale ICS and the CIO of Humber Teaching NHS Foundation Trust.


Dr Ayesha Rahim Dr Ayesha Rahim – CCIO, Lancashire and South Cumbria NHS FT & Clinical Lead for Digital Mental Health, Transformation Directorate NHSE/I
Ayesha Rahim is a consultant psychiatrist and CCIO. She is also the Clinical Lead for Digital Mental Health in the new Transformation Directorate of NHSE/I. She leads a team of clinical informaticians in her organisation and has successfully delivered several large-scale digital transformation projects. She is a founding member of the Shuri Network which supports BAME women in digital health, and offers personal shadowing opportunities and mentoring to other professionals. Ayesha is also a Fellow of the Faculty of Clinical Informatics, and is a keen proponent of User Centred Design.


Linda VernonLinda Vernon – Acting Digital Culture and Transformation Clinical Lead, Lancashire and South Cumbria ICS
An advanced physiotherapy practitioner by background, Linda Vernon is interim Digital Culture and Transformation Clinical Lead across Lancashire & South Cumbria ICS.  Passionate about upstream population health, co-production and empowering individuals and communities, Linda leads digital programmes supporting social prescribing, self-management and digital inclusion across Lancashire & South Cumbria. Linda enjoys climbing fells in the Lake District, playing ukulele and singing, and believes the health of the planet and her inhabitants are mutually dependant.


Professor Will DixonProfessor Will Dixon – Consultant Rheumatologist, Salford Royal NHS Foundation Trust & Professor of Digital Epidemiology, University of Manchester
Will is a Professor of Digital Epidemiology at the University of Manchester and Director of the Centre for Epidemiology Versus Arthritis. He is also a practicing consultant rheumatologist at Salford Royal NHS Foundation Trust. His research interests are using digital health data for population health research, collected from both clinicians and patients.


Dr Mohammad Al-UbaydliDr Mohammad Al-Ubaydli – CEO, Patients Know Best
Mohammad is founder and CEO of Patients Know Best. He trained as a physician at the University of Cambridge; worked as a staff scientist at the National Institutes of Health; and was a management consultant to US hospitals at The Advisory Board Company. Mohammad is the author of seven books, including Personal health records: A guide for clinicians and Streamlining Hospital-Patient Communication: Developing High Impact Patient Portals. He is also an honorary senior research associate at UCL medical school for his research on patient-controlled medical records. In 2012, he was elected an Ashoka Fellow as a social entrepreneur for the contributions he has made to patient care.

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