A bad week in the bunker for care.data
EHI editor Jon Hoeksma reflects on another difficult week for NHS England’s flagship open data project, and its champion Tim Kelsey.
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‘Exciting’ care.data info plan promised
NHS England will use the six month delay to care.data to launch a re-engagement programme to get the public on board, national director of patients and information Tim Kelsey has told MPs.
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Care.data should be opt-in – Jarman
The care.data programme should be opt-in not opt-out, well-known health data expert Professor Brian Jarman has said.
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Pseudo at source ‘not ready’ – Kelsey
NHS England’s director of patients and information Tim Kelsey says ‘pseudonymisation at source’ technology is not ready for use on the care.data programme.
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Care.data delayed
NHS England has announced a delay to the start of care.data extractions to allow more time to build public confidence in the scheme.
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National Information Board detailed
The Health and Social Care Information Centre has been made a full member of the Informatics Services Commissioning Group, which will be renamed the National Information Board.
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Re-identifying care.data illegal
There is a “theoretical risk” that data released to researchers from the care.data programme could be used to re-identify patients, but this would be a criminal offence, NHS England’s director of patients and information has said.
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NHS will be dependent on EHRs – Hunt
The health service will become “totally dependent” on electronic health records over the next five years, health secretary Jeremy Hunt has said.
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Care.data opt-out ‘not clear’ – ICO
The Information Commissioner’s Office is concerned that the information provided to patients on care.data is not clear enough about how to opt out of the programme.
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Care.data: a row waiting to happen
EHI news editor Rebecca Todd takes a look back at the creation of the care.data programme and the concerns many have about its implications for patient privacy.
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